I may not have much to update with in the next few months, since life is pretty intense currently. These things happened last month:
- I was diagnosed with Chiari Malformation Type 1 of the brain, which means my brain has slumped down in my skull and the cerebellum’s tonsils have fallen out the bottom into my neck. Just slightly. Enough that I have symptoms. Which means I’m facing a very likely possibility of skull/brain surgery (and/or spinal cord surgery) in the next few years. Ideally after my husband is done with his residency.
- My husband was gone for half the month interviewing for residencies. We’ll know in 23 days if he was accepted to one of them, and if he has been, we’ll move in June or July. So now I’m working to get things thinned down to bare minimums around here. I may have some shrine tools and pretties going up for sale. I’ll post them here.
- Pony was diagnosed with ASD (specifically what would have been considered as Asperger’s before) last week. This came as no surprise to us, but due to the fact she’s able to pass as neurotypical in most situations I have had no less than 3 people question the diagnosis. This week has been a blur of phone calls, more evaluations, and trying to figure out what will be in her best interest and not just what they suggest to come off as neurotypical.
- I got everything in line to get my wheelchair built for me and should be getting it in about 9 weeks or so. I’m excited about it, because by the time it gets here I may need to rely on it due to fatigue while I recover.